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optimstic_kb

Living w MS & trying to stay optimistic. Ambassador for National MS Society. Blogger helping others with MS through writing, connecting, and listening.
#multiplesclerosis #msadvocate #invisibleillness # #multiplesclerosis #msadvocate #invisibleillness #chronicillness #invisibledisability
Today is #worldmsday! I’m very lucky that my path Today is #worldmsday! I’m very lucky that my path to a diagnosis was probably easier than it is for most people - but it wasn’t without stress, anxiety, and grief. By raising awareness of MS, we can help others who might be experiencing symptoms feel empowered to get help. 🧡🧡🧡 @worldmsday
Living with MS can be a lot. In those times when I Living with MS can be a lot. In those times when I’m stressed out or feeling overwhelmed, I try to turn to nature. It’s amazing what a little sun on my face can do. #multiplesclerosis #msadvocate #invisibleillness #chronicillness #invisibledisability
Today is the first day in about three weeks that I Today is the first day in about three weeks that I’m finally feeling more like myself. I've been sick - it started with allergies and turned into a respiratory infection, which included completely losing my voice for about 5 days. In my latest post, I talk about why some people with MS are more likely to get infections and reflect on not having a voice.⁠ ⁠ #multiplesclerosis #chronicillness #invisibleillness #spoonie #msawareness #msadvocate
My MRIs have been coming back stable, but I haven' My MRIs have been coming back stable, but I haven't been feeling awesome. After talking through my symptoms and challenges in a recent appointment with my neurologist, he thought it could be residual damage from prior lesions or potentially “smoldering MS."⁠ ⁠ In my latest blog post, I talk about smoldering MS - a new area of research that describes the “slow burn” of underlying inflammation in the brain. It’s a slow and hidden process that can keep MS active, even when you’re in remission.⁠ ⁠ Read more at the link in my bio.
Living with MS every day means struggling in ways Living with MS every day means struggling in ways some may never see. Managing tradeoffs between work and rest, independence and support, and hope and fear is a daily reality. ⁠ ⁠ The invisible side of MS is one I'm very familiar with. ⁠It can be hard to describe a physical feeling that no one can see or experience but you. I deal with a lot of sensory issues in my new MS life. These “invisible symptoms” bother me every day in some capacity, but the severity isn’t always the same. ⁠ ⁠ It reminds that even on good days, MS is still there. I’m so grateful for the work the @NationalMSSociety does to advance research, share information, and advocate for a future free of MS. ⁠And I'm proud to be an MS Ambassador to help raise awareness.⁠ ⁠ During MS Awareness Week, I’m joining the NMSS in revealing the unseen realities of living with MS.⁠
I've talked before about the strange sensations #m I've talked before about the strange sensations #multiplesclerosis can cause, and how hard it can be to describe them. The one that happens to me the most often feels like sparklers - that's the best way I can explain it. Head to the blog to read more.⁠ ⁠ ⁠ #chronicillness #invisibleillness #msblogger #mslife #msblog #msfighter #MSadvocate
I love being an advocate for #multiplesclerosis… I love being an advocate for #multiplesclerosis...but sometimes I need a break from all the MS talk. In my latest post, I talk about why it's important to take micro-breaks from advocating. Check it out in the link in my bio.⁠ ⁠ #MSadvocate #multiplesclerosisawareness #chronicillness #invisibleillness #spoonie
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